
Neurology Publications

Epilepsy among the older population of sub-Saharan Africa: Analysis of the global burden of disease database
This study aims to characterize the disease burden of epilepsy among the older population in SSA via a large international database.

"Walking the Journey Together": Creating a unique learning module in provider-patient communication for the care of epilepsy in Uganda
This report documents the creation of a practical communication skills module about epilepsy care, specifically targeted at first-line care providers who treat patients with epilepsy in Uganda.

Evaluation of a tailored epilepsy training program for healthcare providers in Uganda
This study evaluated an epilepsy training program for healthcare workers that was designed to improve their knowledge of epilepsy, its treatment, and its psychosocial effects.

Barriers to biomedical care for people with epilepsy in Uganda: A cross-sectional study
The current study aimed to formally evaluate barriers faced by people with epilepsy (PWE) in Uganda when seeking biomedical care.

Leveraging the lessons learned from studies on the cultural context of epilepsy care in Uganda: Opportunities and future directions
In this summary paper, we review the body of research contained in this special issue, The Intersection of Culture, Resources, and Disease: Epilepsy Care in Uganda, and corollary recommendations for a way forward.

Hospital-based epilepsy care in Uganda: A prospective study of three major public referral hospitals
This study sets out to describe the current demographics of people with epilepsy (PWE) attending hospital-based care in Uganda and the epilepsy treatment practices within three of the largest Ugandan public referral hospitals.

Pluralistic and singular causal attributions for epilepsy in Uganda
The objective of this study was to characterize beliefs about seizure etiology to gain a better understanding of how epilepsy is conceptualized in the community in order to inform culturally appropriate educational policies and interventions.

Sociocultural determinants and patterns of healthcare utilization for epilepsy care in Uganda
In this study, we simultaneously explore how beliefs about epilepsy causation, perceived barriers to care, seizure disorder characteristics, and demographics influence the initial choice of healthcare for epilepsy and its impact on attaining biomedical care (BMC).

Stakeholder views of the practical and cultural barriers to epilepsy care in Uganda
This study sought to elucidate the barriers to biomedical care for PWE as well as identify potential solutions to overcome these barriers from various stakeholder perspectives.

Epilepsy beliefs and misconceptions among patient and community samples in Uganda
The objective of the study was to characterize and compare the attitudes, beliefs, and perceptions about epilepsy across community and patient cohorts in Uganda.

Healthcare provider perspectives regarding epilepsy care in Uganda
Despite the high epilepsy prevalence, there are no systematic descriptions of healthcare provider (HCP) perceptions and needs in managing people with epilepsy (PWE) in Uganda. Identifying these perceptions and needs is crucial for understanding community priorities, thereby enhancing the development of culturally sensitive communications, interventions, and research approaches.

Validity of the Personal Impact of Epilepsy Scale (PIES) in patients with epilepsy in Uganda
We sought to address the construct validity and reliability of the Personal Impact of Epilepsy Scale (PIES), an epilepsy-specific quality-of-life measure, in patients with epilepsy in Uganda. We also sought to assess the applicability of the scale across three languages: English, Luganda, and Runyankole.